Beach Meditition

 This is just over 9 minutes of a beach meditation that I recorded today.

ME/CFS

ME/CFS stands for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.

A complex, long-term condition characterized by extreme fatigue that doesn't improve with rest, sleep problems, and difficulty with thinking, memory, and concentration. A key feature is post-exertional malaise (PEM), where physical or mental activity can cause symptoms to worsen after a delay. 

Key aspects of ME/CFS

Complex condition: ME/CFS affects multiple body systems, including the immune, nervous, and endocrine systems. 

Persistent fatigue: The fatigue is overwhelming and different from normal tiredness; it does not go away with rest. 

Sleep disturbances: Many people with ME/CFS do not feel refreshed after sleeping, and some experience daytime sleepiness. 

Cognitive difficulties: Common symptoms include a "brain fog," which can involve problems with memory, focus, and finding words. 

Post-exertional malaise (PEM): A hallmark symptom where activity leads to a significant worsening of symptoms, which can be delayed and last for hours or days. 

Other symptoms: Other potential symptoms include muscle and joint pain, headaches, dizziness, and sensory sensitivities. 

Fluctuating nature: The condition is often fluctuating, with good days and bad days, and relapses are possible. 

Most suffers with Long Covid are now getting a ME/CFS diagnoses instead.

NHS

I was diagnosed with this in 2018, after climbing Pen E Van in Wales and not recovering.  After 2 months, I was considerably ill and my mental health went to that place nobody ever wants to go too, I honestly didnt think I could go on living.  

With the right support and medical care, I recieved this diagnoses and 6 weeks of Psychotherapy.

Looking through my medical records I discovered that I probably got ME/CFS at the age of 8 years old.  Everytime I was taken to the doctors, from this age, was with ME/CFS symptoms, but it took until I was 43 amd got so ill that a doctor joined the dots.

I am an active member of The Long-Term Conditions Community and keep in touch regularly with others living with LTCC,  including ME/CFS, Long Covid, Pots. Etc

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The Long-term Conditions Community

-Tanya -

what is AuDHD

AUDHD is when a person has been diagnosed with both Autism and ADHD (Attention Deficit Hyperactivity Dosorder).

Common Characteristics & Conflicts

Novelty vs. Routine: A push-pull between ADHD's desire for new experiences and autism's need for sameness and predictability, causing internal conflict. 

Planning Paradox: Meticulous, detailed planning (autism) often clashes with ADHD's impulsivity and forgetfulness, leading to frustration and unfinished projects. 

Hyperfocus & Distraction: Intense focus (hyperfocus) on special interests (autism/ADHD) can coexist with severe distractibility, making task initiation and completion difficult. 

Sensory Overload: Heightened sensory awareness (autism) combined with ADHD's need for stimulation can lead to rapid overstimulation and meltdowns. 

Social Challenges: Difficulties with social cues (autism) and executive function (ADHD) can impact social interactions, often leading to masking behaviors. 

London Psychiatry

I was diagnosed with this in 2024 and still getting to understanding it myself.  I was 48 years old at the time and relise that all my quarks were 'just me' was a huge relief.

However, a year on, I would still like to have a conversation with my teachers and ask their feelings about this or would they just shrug and say it was the time, we weren't aware, etc.

My main symptoms are Obsessive Reassurance Syndrome and Obsessive Rejecrion Syndrome both (both ORS), which is a common, debilitating symptom of Obsessive-Compulsive Disorder (OCD) and other anxieties where I repeatedly seek validation or confirmation from others, to reduce intense doubt and distress, even when I logically know the answer, creating a cycle that actually reinforces the OCD rather than resolving it.

-Tanya -