A complex, long-term condition characterized by extreme fatigue that doesn't improve with rest, sleep problems, and difficulty with thinking, memory, and concentration. A key feature is post-exertional malaise (PEM), where physical or mental activity can cause symptoms to worsen after a delay.
Key aspects of ME/CFS
Complex condition: ME/CFS affects multiple body systems, including the immune, nervous, and endocrine systems.
Persistent fatigue: The fatigue is overwhelming and different from normal tiredness; it does not go away with rest.
Sleep disturbances: Many people with ME/CFS do not feel refreshed after sleeping, and some experience daytime sleepiness.
Cognitive difficulties: Common symptoms include a "brain fog," which can involve problems with memory, focus, and finding words.
Post-exertional malaise (PEM): A hallmark symptom where activity leads to a significant worsening of symptoms, which can be delayed and last for hours or days.
Other symptoms: Other potential symptoms include muscle and joint pain, headaches, dizziness, and sensory sensitivities.
Fluctuating nature: The condition is often fluctuating, with good days and bad days, and relapses are possible.
Most suffers with Long Covid are now getting a ME/CFS diagnoses instead.
I was diagnosed with this in 2018, after climbing Pen E Van in Wales and not recovering. After 2 months, I was considerably ill and my mental health went to that place nobody ever wants to go too, I honestly didnt think I could go on living.
With the right support and medical care, I recieved this diagnoses and 6 weeks of Psychotherapy.
Looking through my medical records I discovered that I probably got ME/CFS at the age of 8 years old. Everytime I was taken to the doctors, from this age, was with ME/CFS symptoms, but it took until I was 43 amd got so ill that a doctor joined the dots.
I am an active member of The Long-Term Conditions Community and keep in touch regularly with others living with LTCC, including ME/CFS, Long Covid, Pots. Etc
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-Tanya -
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