I spent 4 years fighting the education system on my daughter’s behalf (and would do it again and again) and many years before that trying to get her the recognition she deserved. When the fight came to an end (well seriously reduced, continued fighting until recently) it’s as if God said ”now it’s your turn to take care of yourself” and I released how tired I was, how much pain I was in and how lost and lonely (even with loads of people around me) I felt. I had a moment where I thought my husband and the Kids would be better off without me, I could walk into the sea and walk to Disneyland Paris. My body wouldn’t make it but my soul would. With the help from my Bishop, his counsellor, support group, GP, OT and Therapist I overcame those thoughts. 5 years on I have learnt how to balance my life, how to care for others, how to ask for help and how to care for myself. I don’t live off adrenaline anymore and I don’t allow others to put me in that position. I care for myself so that I can better care for those around me and I am a much better person for it.
We have decided to remove the kids EHCPs. This is the end of our hell, the LA and Education system are meant to help parents but they drain us and leave us suicidal. I am so glad our fight is over. My daughter is about to start work and my son’s school are now amazing. We have got through it with love and support from practitioners, support groups, friends and family.
The system can not be blamed for my M.E./CFS but the fight certainly aspirated it and made it worse. That and climbing pen y fan in Wales
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